Malmo University, Sweden
Posters & Accepted Abstracts: J Pediatr Care
Children have their own way of experiencing things, and research-based knowledge about children’s experiences can further help healthcare professionals to better understanding the children’s world of experiences. Children have a right to participate, receive information, and make health-related decisions. Paediatric care needs to be of good quality; it should meet the children’s needs of safety, and the best interest for the child should always be a primary priority in all actions concerning children. Historically, children have been excluded from the research process or decision making regarding their own health care. One reason for this could be that research with children as participants raises many ethical questions: another reason may be that children have been seen as vulnerable and without competence due to their age and immaturity. In view of the recommendation by UNCRC, that all treatment and procedures should be based on respect for the child’s autonomy and integrity and that it should be performed with the child’s active participation, today children are asked about their view on many aspects of their lives. Children’s experiences in paediatric care of not being listened to, or not being supported, and their desire to have more of a say, are reported by several researchers. When children describe the factors which may restrict them from actively participating in their care, they include, for example, fear of causing trouble by asking questions, fear of being ignored or disbelieved, and the difficulty to under-stand medical terminology. Lack of involvement in their own care can result in the children feeling unprepared for the necessary procedures, which can increase fears and anxiety. Both a child and a child’s perspective are used today in paediatric nursing and research, and both are focused on children. During the last twenty years, there has been an active discussion around the child perspective in paediatric care, and family-centered care (FCC) has been quite central in these discussions. FCC is based on partnerships between children, families, and healthcare providers, and it has been considered the best way to provide quality care to children in hospital, despite a lack of evidence about its effectiveness. Since the children participate more and more in research, knowledge about the importance of their own experience and perception of health care has increased.