A UK Qualitative Study of Life of Living and Dying With Dementia in the Last Year of Life

Background: Dementia is a life limiting illness, but the trajectory of dying can be difficult to establish and care atend of life can be variable. Methods: This UK study was carried out to explore the end of life care experiences of people with dementia from the perspective of their family careers. In depth interviews were conducted with forty bereaved family careers of people with dementia.Conclusion: This large qualitative study has identified that there are several gaps in the end of life care of people with dementia and frequently there is poor communication during the last year of life. The need for high qualityintegrated care for people dying with dementia with appropriate support during the last year of life is identified.

Author(s): Mari Lloyd-Williams

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